The trouble with being chronically ill is that it can be terribly isolating. Particularly with an invisible illness, it’s hard for other people to see that you’re ill and as a modern society, we still associate a lot with visual evidence. Plus, if you’re semi-housebound, then you become somewhat illusive. It’s easy for friends or even family to feel that you don’t want to be part of their life even though you really hate missing out on the community you so desperately want to be part of.
As much as chronic illness can be isolating, we, as sufferers, are also responsible for educating those around us. For those close friends who really care or who want to know what it’s like, it helps to be able to point them to descriptions or to invite them over to see for themselves how daily life actually goes.
Here are some videos that I relate to and found helpful: